A Redhead's TOS Journey

~ My experiences living with Thoracic Outlet Syndome ~

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Thursday, February 27, 2014

Rare disease Day 2/28/14



http://www.rarediseaseday.org/stories/123



Posted by Robin at 7:41 PM
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Labels: rare disease, TOS
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What is Thoracic Outlet Syndrome?

What is Thoracic Outlet Syndrome?
The thoracic outlet is the space between your your first rib and your collarbone (clavicle). This tight passageway is filled with blood vessels, arteries, muscles, and nerves. Thoracic Outlet Syndrome (TOS) refers to the abnormal compression or irritation of these vessels, arteries, nerves, and muscles in this area.
~ ~ ~
**Disclaimer-I am not a medical professional. Please consult a medical professional about your own situation. I simply share my experience and TOS info I have gathered over the years. Please feel free to contact us using the form below!

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~ A Family of TOS ~

~ A Family of TOS ~

Hello there!

My son, my daughter, and I all have Thoracic Outlet Syndrome. We're learning how to adjust and adapt to living with TOS and all the doctors, tests, surgeries, physical therapy, and pain flare-ups. Join me on this journey to live well- even with TOS!

Thoracic Outlet Syndrome on facebook! Join us!! (click picture)

Thoracic Outlet Syndrome on facebook! Join us!! (click picture)

TOS Symptoms...

May include, but not limited to:
Numbness, swelling or tingling of the arm, shoulder and hand.
Arm, neck, back, hand achiness or throbbing feeling.
Pins and needles feeling down the arm.
A "heavy feeling" in the arm.
Tingling feeling in the hands.
Coldness in the hand and arm.
Shoulder, neck, back, pain.
Restrictive movement of the neck arm and shoulder.
Discoloration of the arm and hand due to decreased blood / oxygen flow.

Order a Gentle Hugs Pin or T-shirt! (click picture)

Order a Gentle Hugs Pin or T-shirt! (click picture)

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TOS info on Pinterest - click pic!

TOS info on Pinterest - click pic!

Helpful TOS Info

  • Video Explanation of TOS
  • Kathleen's TOS story
  • living with tos -fellow tos blog post
  • Dr. Schierling - TOS info
  • TOS Diagnosing Info
  • Hope for TOS! Anat Baniel Method Video
  • My Doctor - Dr. John Collins Jr./Kalamazoo, MI
  • psychcentral TOS forum
  • TOSS - Caregiver article
  • Invisible Disabilities
  • Hope for Invisible Illness
  • American Chronic Pain Association.
  • What is a Cervical Rib?
  • Fellow TOSer blog-Sifa's Corner
  • TOS education
  • Spoon Theory- Explaining what it's like to live with pain
  • Dr. Scott Werden/Neo Vista MRI for TOS
  • Marrianne's TOS Life
  • Feldenkrais-Gentle physical therapy
  • Affordable Feldenkrais CD- 48 lessons

Gentle Hugs~

Gentle Hugs~

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Labels

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LooPo Seat Belt Tension Adjuster

LooPo Seat Belt Tension Adjuster

Blog Archive

Feldenkrais at Home with Bruce Holmes (click picture)

Feldenkrais at Home with Bruce Holmes (click picture)

Rare Disease Day 2014

Rare Disease Day 2014

Microwave/Freezer packs

Microwave/Freezer packs

A Reluctant TOS Prayer

A Reluctant TOS Prayer
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