Showing posts with label frustration. Show all posts
Showing posts with label frustration. Show all posts

Monday, June 9, 2014

My assessment of physical therapy, so far.

My ear and jaw pain was gone for two days. I say 'was', because right after going to p.t. the other day, the pain was back. Seven hours later, the feeling of a knife in my ear, head, and upper trap is still there. Add to that a discussion about nerve gliding and working on the stiffness in my neck/spine leading up to eventually doing the arm bike (which I loathe from previous experience) and the rowing machine to gain strength. A wall went up in my mind as soon as p.t. mentioned this, even though he tried to talk me through it.
"I wouldn't take you through what we've been working on to calm and normalize things just to throw you on a machine for you to flareup, we're going easy. But still, we are headed that direction."
I'm so nervous about that. I'm sure it showed on my face.

He patted me, said the return of the pain was just temporary.

He talked to me about the pain cycle a bit.  Using E-stim is supposed to help temporarily break that pain cycle, hopefully long enough to give me a chance to be more active, gain some strength.

My assessment of p.t. at this point-
Sometimes I leave p.t. in more pain than I went in with, which is a downer.
Having that pain several hours later, and the next day- is a bummer.
Feeling like I'm at the mercy of the pain is depressing.
I want to believe things will get better.
Wondering if maybe it -"just is what it is", and I should stop torturing myself.
And then...I wake up one day without pain, and that is a good day!

Plus, I have to admit, my ear, jaw, head pain is not constant like it was for a long time. Since starting p.t., the pain comes and goes now-with no predictability, but its not all the time--a definite improvement.
So I'll keep doing all the exercises and stick with p.t.

I hope my experience with therapy will be helpful and give some hope to my fellow TOSers...because we TOSers need hope.

Gentle hugs~

Thursday, March 13, 2014

Stop the TOS bus, I want off.

I titled this blog Redheads TOS Journey with the idea in mind that life is a journey, and if you keep moving, you never know what is just ahead, around the corner or out of sight-but it is up there waiting for you. Keep on moving forward, one step at a time, yes, lugging baggage along with you, but moving forward nonetheless.

Can I just say, after dealing with this for so long, and then learning my children have this baggage to carry through life as well, watching them suffer...I am over the metaphore.
Give me a chair to sit in, enough moving forward bullcrap. I just want to not think about what I can't or shouldn't do because it will make my pain flare up. I want to not have to be mindful and aware-I want to not think about TOS, or tests or doctors or surgery.
I want to just stop. I want to dump this crummy baggage.


Monday, May 20, 2013

Pain and the weather

Today it is quite humid in the Midwest, USA.
My hands are swollen, arms, neck throbbing the moment I got out of bed this morning.
I'm getting a slight bit of tingling in my hands.
The skies are grey, rain and thunderstorms are in the forecast.
I would love to understand how and why weather affects my symptoms.

Today makes me want to move to the North Pole.

http://www.intellicast.com/Health/AchesPains.aspx