Showing posts with label thankful. Show all posts
Showing posts with label thankful. Show all posts

Thursday, December 26, 2013

End of the year updates 2013

First, much love and appreciation for those who have contacted us and expressed questions, thanks, and shared their own TOS journeys with us. It means more to me, to us, than you know to be able to share this journey with you and hopefully encourage each other along the way.

So the daughter and I trekked to a University hospital a week ago so she could get the testing that I was supposed to get. I let her jump the line because I think she needs relief more than I do, and because I'm a mom.
She had EMG, nerve testing, very painful, needles poking around to test nerve function. The frustrating part was the person doing the EMG commented they "...do not really believe in all this 'TOS' so much..."  Which makes me flippin' crazy. I reminded my daughter that technician is not a Doctor, so they can have their opinion, but its not worth so much.  (Images borrowed from google).

Then we waited around two hours to go for CT scan, laying on stomach with arms overhead, head facing one direction. The scan was with contrast, which if you've had done you know has interesting warm sensations as it goes through your system and leaves you jittery afterwards (actual picture of daughter with contrast stuck in her arm below). They had to turn her over when the scan was done because her arms were numb. Not a great day for the daughter. Now we wait til early January to go back for more tests and the Doctor consult.

This physician, (I am told by a fellow TOSer who was kind enough to share their experience with me from the facebook TOS group-thanks!), does remove the cervical ribs, and he does utilize supracervical approach. This is good news because our previous Doctor uses transaxillary approach and we wanted a different opinion, to see if removing the cervical ribs would be preferable.
So...here we go, contiuing down the TOS road in 2014. Scary, but I just keep hoping for relief, and ya' gotta have hope.
Gentle hugs to all our fellow TOSers! We will keep you updated on this journey.

Thursday, March 14, 2013

Givin' up some praise

I recently took part in a TOS survey.

One of the questions asked if I used social media to praise or give credit to my doctors/surgeons. Another question asked if I used social media to refer others to the doctors who have treated me for TOS.

I have and will continue to refer people to my TOS doctor.
But I must confess, I have not given proper acknowledgement nor been nearly as thankful as I should have been for the treacherous work he does attempting to fix peoples bodies. I mean, he literally gets inside, delicately rearranges the things that cause pain- it's just amazing to me the work that fine surgeons do!  The possibilities for renewed life and hope people can have through the work doctors do...so awesome.

Nurses, a caring nurse is seldom thanked for going out of their way to do extra little things to make their patients more comfortable. We leave the hospital and move on with our lives. I know for myself, I intended to send a few thank you notes to some nurses that never got sent in the postop haze of life.
But I do remember them. And I am so very thankful for the nurses who were excellent in their care of me and my kids after our rib resection surgeries.

I think what has me expressing all this gratefulness is that our personal family doctor moved away recently, and I will miss that doctor greatly.

Unfortunately it seems to be true in life, you don't appreciate what you have sometimes until it's gone.
A doctor who listens...really listens, takes time, works with you, and takes you seriously is a treasure.

A treasure that all of us with TOS should be thankful for.
Don't be afraid to tell your doctor you appreciate them either.

After my sons rib resection, he was all healed and back to normal teenage life, playing football.
I sent his surgeon a thank you note with a picture of my son in his football uniform, so he could see that he had indeed helped restore him to a normal life.

We've all read about and even experienced alot of difficult situations regarding some doctors lack of care . It's easy to find the bad stories.

Let's try to give equal time to those in the medical profession who have done a good job and are worthy of our respect and appreciation.

When you have a child, or in my case two kids with TOS, and they are in constant pain, and a doctor does his best to help them, and your child goes on to live life and not have so much pain--that is worth more than words can even say!

So to all the TOS surgeons, physical therapists, nurses, pharmacists, all those in the medical profession who have dedicated themselves to helping ease our suffering-
@>--Thank You!

Wednesday, November 21, 2012

TOS Thankfulness

Things this TOSer is thankful for...


1. Family members who try to be understanding
2. Moments of time that I am relatively pain free
3. Suport groups of fellow TOSers who also understand
4. Pain meds and supplements
5. Books and internet- knowledge is power
6. Doctors who are skilled, willing and able to treat TOS
7. Little things that make nice nicer for a TOSer-hot packs, seatbelt clips, etc.
8. My comfy chair
9. Enough grace for each new day
10. Relaxing music
11. Sleep
12. Cold water and hot tea
13. My dog curled up next to me
14. A strong enough mind to carry on
15.  Mostly I'm back to number 1...I'm thankful for love.

Also, I hear there will be a Black Friday super deal on LooPo Seat belt tension adjusters.